My fight with PANDAS

(Rough draft…interrupted for a Lyme meeting….will edit and finish later tonight – 5/17/15) If you are wondering why I would be fighting with a giant, cuddly panda bear…..I assure you, no animals were hurt in the making of this post đŸ˜‰ In January of 2014, I was heading back to my neurosurgeon, to have an ICP monitor placed into my skull, to figure out what was causing my suspected high…

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Lyme Disease Poem

This poem was written by my teenage daughter. Any parent with Chronic Lyme Disease knows how hard it is to hide the pain, day in and day out. You want to shield your children….but then the tremors, the weight loss, hospital admissions…all become your new normal. As much as it hurt to have them ever witness such suffering, it would have hurt them most if I had given up. There…

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Lyme & friends..

PAGE UNDER CONSTRUCTION   UNTIL I CAN UPDATE THIS PAGE, I WILL JUST LIST THE COMMON CO-INFECTIONS THAT ACCOMPANY LYME DISEASE, AND A SHORT VIDEO ABOUT BABESIOSIS, WHICH MY 11 YEAR OLD HAS. LYME VERY RARELY TRAVELS ALONE…IT OFTEN BRINGS ITS NASTY FRIENDS TO THE PARTY 😖 Most common co-infections in the U.S. are… Bartonella, Babesia, Ehrlichiosis, Anaplasma or Mycoplasma, Tularemia, Rocky Mountain Spotted Fever and Q Fever.   Short…

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SAVE THAT TICK!!

It is that time of year again. The weather is warming up, kids are rolling around in the grass, Dad is mowing the lawn, Mom is gardening, and good ole Rover is frolicking in the yard. It is both a beautiful time of year, but also can be a very dangerous time. In order for everyone to remain healthy, and thoroughly enjoy their summer, there are some simple steps you…

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Lyme Psychology

PAGE UNDER CONSTRUCTION   PLEASE CHECK BACK… Common psychological issues linked to Lyme and co-infections.. Anxiety Depression Panic Depersonalization Disorder Derealization Disorder OCD and more…coming very soon…. **There are two great Psychiatrists who specialize in Lyme induced psychiatric struggles, that I greatly admire. Dr. Virginia Sherr, whose website is listed in ‘Lyme Links’, and Dr. Robert Bransfield, who is knowledgable in Lyme and co-infections, and PANDAS/PANS.  

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What’s all the BUZZZZ about?

What is BVT? It is Bee Venom Therapy. It is one of the alternative Lyme treatments that has shown some promise. Just like any other treatment, please keep in mind that what may be right for one, is not what is best for all. For instance, BVT may be great for our friend Debie Elder (who graciously sent me info for all of you!)), DIV Ozone (Direct IV) saved my…

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Needing Immediate Help??

YOU ARE NEVER ALONE!  WE AREALL IN THIS FIGHT TOGETHER! IF YOU WANT TO TALK TO SOMEONE WITH LYME, THERE IS ALWAYS A LYMIE ONLINE SOMEWHERE. Go to The Mayday Project on Facebook, or search Lyme on Twitter or Facebook. A fellow fighter is always a click away, and ‘gets it’. WE WANT TO HELP! My Twitter is @LymeSherbert 💚 YOU MATTER!!!

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Treatment Guide

This is the guide from ‘Compendium of Tick-Borne Disease’, by Dr. Kathy Spreen. I will add more information in the coming days, but this is a good reference guide for antibiotic treatment options. **If you have Ehlers-Danlos Syndrome, Cipro and all quinolones are not recommended. I have had 2 spontaneous tendon ruptures due to Cipro, before knowing that I had EDS. Please refer to your physician that is knowledgable about EDS….

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Why IGeneX?

  PAGE UNDER CONSTRUCTION INFORMATION COMING SOON!!! I will go into further detail, but for right now….these are my Western Blot results from 2/2014….negative for Lyme and  Bartonella. The 2 infections that I DO have….see IGeneX Lyme results below. Big difference…life altering difference…decision making difference. First picture is WB, second is IGeneX. Money well spent!!!! I can help you with tips to reduce IGeneX costs. Info coming soon!     …

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